Categories
BLOG

joey’s strain

Joey’s strain

Buy the Joey Strain Medtainer to promote the new patient base, special needs families.
themedtainer.com

I’m often asked by physicians, case workers and parents what are the first noticeable changes to a person on the autism spectrum when the “whole plant” CBD & THC are effective in a medication management routine. First things first…

Mieko Hester-Perez specifically invokes the First Amendment rights of freedom of speech and of the press without prejudice. The matters discussed are not intended to diagnose, cure, prevent or treat any disease but are proven useful for health and life extension.

Mieko Hester-Perez will always recommend when and wherever possible that a licensed local healthcare professional or group of professionals be consulted.

Now we can move on…

Since 2009, this treatment has taken flight with families with children on the autism spectrum and seems to be a realistic treatment topic among circles of parents. Many pass on my information like an underground railroad system. From ages 6 years to 54 years, the results yield 15 similar results when using the entire plant. As I browse through information given to me from families in my network, given the right cannabis plan, this treatment will prove to stand out as any parents “go to” option to treat autism like systoms before moving forward with another psythropic medication.

Cannabis treatment plan consist of:

  1. Preferred Delivery Method: Ediables, capsule, oil, berveage and vape pen option (Adults in group homes…)
  2. The Strains (Since currently there’s no formal regulations or medical educational componets for traditional medical professionals in place, advocates like myself and collectives I work with become “the strain source”).

Dosage Management: This also depends on the preferred delivery method and severity of the autism symptoms. I always ask parents, what are your priority behaviors and symptoms, this will help form an ideal plan for your family.

I’ve compiled data from persons on the autism specturm from ages 6 years to 52 years old who have choosen to treat autism symtoms with the whole plant “CBD & THC” and I have a list of the top 15 noticable similar results in such a vast age group:

  1. Families were able to introduce new food items.
  2. Families observed their child receptive in a productive educational setting.
  3. Stimming becomes limited or drastically reduced (Definition of stimming).
  4. Limited repetitive behaviors.
  5. Open to sibling’s interaction.
  6. Acknowledgment of pets.
  7. Approachable to new surroundings.
  8. Friendly to new people.
  9. Receptive to schedule/routine changes.
  10. Builds new texture tolerance (for example sand, water).
  11. Immediate visual healthy appearance.
  12. Flushing of toxins.
  13. Consistent eye contact.
  14. Improved sleeping routine.
  15. In older adults, understanding the concept of helping and assisting with pride can be challenging. Autism, removes the purpose and praise but, 7 out 10 families I’ve spoken with say this type of behavior is becoming more frequent. The miracle claim becomes a fight to find its science. For example, a male 22 years of age with severe autism and spends most of his time stimming with repetitive behaviors, had watched his siblings help take groceries out of the car for months. He had been on his cannabis management treatment for a less than 30 days and his mom emailed me, her son came out of their home to the driveway and helped with the groceries and was giving high 5’s. This is another example of a person on the autism spectrum being receptive to assist in a productive chore, and two weeks later the routine has not stopped. Skeptics would like say this behavior could have been taught over time. I agree with this statement, but, cannabis provides a “window” to receive instructions that exhibits euphoria and is more likely for person on the autism spectrum to recall.

In conclusion, these 15 similar results deserve to be at the top of the scientific research forum. As a parent you lost me at understanding autism and the blues that come with it.

Cannabis has left myself and many other families with the joys of finding colorful personalities…isn’t that what medical science is about?

0:04 / 3:24 Vea el reporte de NTN24 sobre el uso del cannabis como tratamiento alternativo en niños autistas 0:04 / 3:24 See the NTN24 report on the use of cannabis as an alternative treatment in autistic children

‘Joey’s strain’: OC boy with autism has own strain of medical marijuana

  • Share:
  • Share
  • Tweet
  • Email

ORANGE COUNTY, Calif. (KABC) — At his age, most kids get their first bike or their own computer. Joey Hester-Perez got his own strain of medical marijuana.

“It’s called Joey’s Strain,” says Joey’s mother Mieko Hester-Perez, who believes the decision to use medical marijuana saved her son’s life.

“Oh, I definitely thought he was going to die,” recalls Mieko. “He’s 42 pounds, he’s 9 years old and the bones in his chest were very visible.”

Joey was diagnosed with autism at 16 months of age. He was later diagnosed with Duchenne muscular dystrophy. Joey’s symptoms were severe and grew worse over time. Mieko and Joey’s team of doctors tried everything. At one point, he was on 13 different medications.

“It was probably the most horrible time in my life, in our family’s life. We did not know what to do. It was a very dark place for us,” says Mieko. “I did have people tell me, ‘You need to place Joey in a home.’ And I said, ‘No, Joey is a part of this family. He’s going to stay a part of this family.”

Mieko says her family’s doctor told her to start planning Joey’s funeral.

“I couldn’t bear that. I couldn’t imagine my life without Joey,” says Mieko.

She turned to medical marijuana, baked inside a brownie. The results were immediate; he laughs, he smiles, he teases his in-home nurse.

Joey receives about one brownie per week. The brownies contain cannabis oil derived from a special strain of marijuana created in collaboration with the Buds and Roses Collective in Studio City.

“Joey and I went through approximately 14-15 different strains,” says Mieko. It was a process of trial and error over a period of several years.

Now, Mieko says, “He’s happy, he’s calm, he’s no longer on the edge.” Most importantly, Joey put on weight.

“It’s very satisfying and now we’re getting more and more parents to work with,” says Aaron Justis, the president of Buds and Roses Collective. “People are getting it. The science is behind it. It feels really good.”

Aaron says he’s seeing more and more parents come into his collective looking for help with their special needs children. Aaron stresses that none of the children smoke the marijuana. Instead, they consume edibles like cookies or brownies. Oils derived from cannabis are another option.

“So they just can take a grain of rice-sized oil on their finger, put it under the tongue, and it’s very effective. That’s the most concentrated, purest way,” says Aaron.

Kyle Kushman is a master cultivator of medical marijuana. He created “Joey’s Strain” using his own line of nutrients called “Veganics,” made strictly from organic materials and nothing from animals.

“This is one of the most therapeutically active substances known to man,” says Kyle, who likens his work to that of a winemaker. “Winemakers spend their whole lives trying to create one new variety of wine they can be proud of. Cannabis is so special that every seed that comes off of a cannabis plant is unique and has a slightly different cannabinoid profile.”

Cannabinoids are the active molecules found in marijuana, or cannabis; they are the focus of what little research is being done on cannabis in the United States.

“The research on cannabis and autism-related conditions is really just starting,” says Dr. Daniele Piomelli, a professor of Neurobiology, Pharmacology and Biological Chemistry at U.C. Irvine.

Piomelli studied the effects of naturally occurring marijuana-like molecules called endocannabinoids on mice with a genetic mutation that causes autism.

“So just by enhancing, increasing the marijuana-like signals in the brain, we were able to revert the entire set of symptoms caused by this mutation,” says Piomelli.

Piomelli says anecdotal evidence is growing that marijuana can relieve the symptoms of autism, but he cautions that anecdotal evidence can often be misleading. Clinical trials need to be conducted, but research is being stifled by strict, federal drug laws.

“We are subjected to a control that is, quite frankly, a little ridiculous. If I want to buy marijuana, I can go to the corner and buy it,” says Piomelli.

Researchers who want to use cannabis in their studies must navigate a maze of bureaucratic red tape and receive permission from multiple federal agencies.

“It would be much better if the bureaucracy were reduced. It would accelerate the work and we could get effective medicines to the patients much more quickly,” says Piomelli.

Other experts agree, including Dr. Sharon Levy of Boston Children’s Hospital and the American Academy of Pediatrics.

“I think the best way to treat these kids would be to develop cannabinoids, or these active molecules, into proper medication the way we do with anything else,” says Levy.

She cautions that exposing young brains to such powerful chemicals can have toxic effects like increased risk of mental health disorders as an adult and even a drop in IQ.

“I don’t believe that patients are best served by a policy that just loosens access to marijuana, and then requires parents to go to dispensaries, which are really not the same as pharmacies, and have them sift through plants and figure out how to administer and what to administer. And because there is no consistency, we don’t know if we can replicate the findings when parents go back,” says Levy.

Mieko says she’s found new purpose in life through helping other families and pushing for the reform of U.S. drug laws. She’s active with “NORML,” the National Organization for the Reform of Marijuana Laws.

“We need to open the door to more research so we can do this the right way,” says Mieko.

Mieko, a single mom who lives in Orange County, says she never expected to become an expert on cannabis. She believes it’s taught her to become a better mother and a better advocate for autism-related issues.

“He may never walk, he may never form a sentence, he may never throw a ball. But he will smile, and that’s all I’ve ever wanted,” says Mieko.

Five years ago, Orange County mom Mieko Hester-Perez made a controversial decision that may have saved her son Joey's life.